Tuesday, December 14, 2010

"my lyme disease is not the IDSA lyme disease"

This Facebook movement, "My Lyme Disease is not the IDSA Lyme Disease" is a reaction to the anti-Chronic Lyme disease article that appeared in the Chicago Tribune on Dec. 8, 2010. (Google "Chronic Lyme Disease: A dubious diagnosis" if you want to read the article)

People are encouraged to tell their own Lyme stories either on a blog or on Facebook (use the "Notes" section and change your privacy settings). Post your link on Facebook: Lyme Friends.

This article was so disturbing to me. It also ran in the LA Times and Hartford Courant, which are owned by the same company. I posted comments on-line to all three papers, as well as sending emails to the authors and Trib editor.

I decided to participate in the movement, so I started a blog with my story. Out of respect for my daughter's privacy (which is very important to her these days) my blog is private.

I encourage you to tell your story. You can do it anonymously through a blog or on Facebook.


Wednesday, December 8, 2010

Wisdom from Elizabeth Edwards

I love this quote from Elizabeth Edwards. She was dealing with cancer, but the concept works well with chronic illness too:
“Resilience is accepting your new reality, even if it’s less good than the one you had before. You can fight it, you can do nothing but scream about what you’ve lost, or you can accept that and try to put together something that’s good.”
It's sad that she died, but her resilient spirit will continue on.